NotMilk - Autism & ADD
"The doctor of the future will give no medicine, but will interest his patients in the care of the human frame, in diet and in the cause and prevention of disease."
Cohen: Smith: Bradstreet: Beta-casomorphin-7 from milk causes autism and ADHD 1.7.01
Subject: NOTMILK - - - BEST DOCTOR IN THE WORLD? MOM!
Date: Sun, 07 Jan 2001 05:04:34 -0500
From: Robert Cohen <email@example.com>
MOM CURES SON BY ELIMINATING MILK
A friend recently sent me an article that appeared in a Manchester, New Hampshire newspaper. (Derry News, December 22, 2000, p 19)
Jill McIntosh (603-437-3375) had found a cure for her son's autism: Eliminating all milk and dairy products and wheat from the child's diet. We recently spoke, and she's allowed me to include her phone number in this mailing!
Jill links autism to a "milk allergy."
SCIENTIFIC PROOF: MILK CAUSES AUTISM & ADD
Florida researcher, Robert Cade, M.D., and his colleagues have identified a milk protein, casomorphin, as the probable cause of attention deficit disorder and autism. They found Beta-casomorphin-7 in high concentrations in the blood and urine of patients with either schizophrenia or autism. (AUTISM, 1999, 3)
Eighty percent of cow's milk protein is casein. It has been documented that casein breaks down in the stomach to produce a peptide casomorphine, an opiate.
Another researcher observed that casomorphin aggravated the symptoms of autism. (Panksepp, J. Trends in Neuroscience, 1979, 2)
A third scientist produced evidence of elevated levels of endorphin-like substances in the cerebro-spinal fluid of people with autism. (Gillberg, C. (1988) Aspects of Autism: Biological Research Gaskell:London, pp. 31-37)
The Autism Research Unit, School of Health Sciences includes the following information on their website:
"The quantities of these compounds, as found in the urine, are much too large to be of central nervous system origin. The quantities are such that they can only have been derived from the incomplete breakdown of certain foods."
PARENT'S MAGAZINE REPORTS MILK LINK TO AUTISM
Search the Internet and you'll find many anecdotal stories from parents blaming their children's autism on milk and dairy products. One such story appeared in the February, 2000 issue of "Parent's Magazine."
For children with autism, milk may very well be the major factor. One out of five American children have been diagnosed with attention deficit disorder. One out of five American children take Ritalin. An alternative therapy? NOTMILK!
For Jill, NOTMILK has made all the difference.
Robert Cohen http://www.notmilk.com
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Autism Protocol Stephen Smith, M.D. Dec 17 2000
Casomorphine is a derivative of casein, which is a milk protein. Casomorphine has been found in the urine in several different conditions including ADD and Autism. Dr. Karl Reichelt has even found this in schizophrenia. Dr. Reichelt has also described the presence of other food-derived polypeptides in the urine of children suffering from ADD and Autism. Paul Shattock has also described these peptides in the urine of autistic children. Some of these polypeptides are biologically active with actions similar to endorphins such as casomorphine. We also report Des-Tyr casomorphine, another fragment of casein. Casomorphines are also an indication of increased intestinal permeability. If casomorphine is elevated it may be beneficial to remove milk products from the diet. Removal of milk products has been associated with improvement of behavior.
Stephen L. Smith, M.D.
310 Torbet Richland, WA 99352 (509) 946-7646
University of Washington School of Medicine Seattle, Washington (M.D. Degree 1980)
Whitman College Walla Walla, WA (B.A. Chemistry 1976)
Post Graduate Training:
Sacred Heart Medical Center flexible (June 1981 to July 1982)
Completed American Academy of Otolaryngolic Allergy
educational requirements for board certification in ENT Allergy in November 1992
American Academy of Environmental Medicine training in environmental medicine 1994 and 1995.
American College for the Advancement of Medicine training program in chelation therapy.
American College for the Advancement of Medicine training program in anti-aging medicine 1997
American Academy of Antiaging Medicine training in anti-aging medicine 1996
Basic and Advanced training in Neural therapy 1996.
Basic and advanced training in NAET allergy elimination technique 1996.
Darkfield microscopy training 1998.
August of 1990 Opened Physicians Medical Center a branch of Physicians Immediate Care Center providing specialized care in allergy and laser surgery. April 1983 to present:
Owner-operator of Physicians Immediate Care Center in Richland, WA., an ambulatory care center. Practice consists of general practice and allergy.
Federal Aviation Administration Medical examiner.
January 1984 opened Physicians Immediate Care in Boise, ID. this ambulatory care center was merged into a company called MedCare, Inc. in November of 1985.
November 1982 to October 1987: Co-founder and owner of Nova Systems, Inc. Nova Systems was a computer and software company specializing in medical, dental, and hospital software.
Nova Systems, Inc. was acquired by Wismer Martin, Inc.
July 1981 to December 1982: Spokane Minor Emergency Centers as ambulatory care center staff physician.
Professional Affiliations and Organizations:
Benton-Franklin Medical Society Member
American Academy of Environmental Medicine
American EPD Society
American College for the Advancement of Medicine
Tri Cities Vocational Center, Advisory Board
Tri Cities Prep, (A Catholic high school) Board Member
American Society for Lasers in Medicine and Surgery
Flying, scuba diving, fly fishing, amateur radio, and snow skiing.
Immediate Care and Medical Centers
1516 Jadwin Richland WA 99352
(509) 946-1695 / 1-800-669-1695 / (509)946-7666 Fax
http://www.aalrl.com/iaginfo.htm#Enkephalins and the Angiotensins
AAL Reference Laboratories, Inc. is pleased to announce the availability of Urinary Polypeptides with Indolyl-acryloylglycine (IAG) and Casomorphine as described by both Paul Shattock and Karl Reichelt. Paul Shattock, who is a consultant with AAL Reference Laboratories, helped AAL Reference Laboratories to develop these tests, and we are currently working in conjunction with Karl Reichelt. Some of the proceeds of the Urinary Polypeptides and IAG go to the Autism Research Unit at the University of Sunderland to support the research work of Paul Shattock.
AAL Reference Laboratories, Inc
1715 E. Wilshire #714
Santa Ana, CA 92705
fax 714-543-2034 If you have any questions, please feel free to
e-mail us at firstname.lastname@example.org or call us at 800-522-2611.
Glueten Free Casein Free Diet
Judy DeHart, Editor email@example.com
GFCF Begin using the GFCF Diet
Explanation of Diet
Printable GFCF Food List
Lab Information for Testing
Frequently Asked Questions
GFCF Cookbooks/Conversion Table
Manufacturer's Toll Free numbers
Scientific Nutrition Explanation
List of Defeat Autism Now! (DAN!) Doctors
GFCF Diet Support Group
started Dec 15 1998 1690 members This list is unmoderated and unrestricted.
The principle aim of this list is to provide a discussion forum for parents of children on the autism spectrum who are avoiding gluten and casein and other substances in their children's diets. We hope that the discussions will include practical information and tips on following a GFCF(etc) diet; scientific research and opinion; the latest developments in understanding GFCF(etc) diet-related health problems; your personal stories and experiences with relation to GFCF(etc) problems; information on what food is GFCF(etc) and what is not; tips on how to eat out of the house; recipes and tips on how to cook and prepare GFCF(etc) food; what vitamins, minerals, herbs and other supplements may be appropriate for a child with autism, how to cope with difficult diet demands, plus support for parents. Appropriate topics for discussion on the list include anything at all related to diet and autism spectrum disorders-including GFCF but also yeast, nitrates/nitrites, dyes, vitamins, minerals,supplements, dealing with teachers, friends, schools, outings, siblings, testing, etc...Please keep general off topic information off the list as much as possible and clearly mark off-topic posts. For immediate help and answers to your questions, visit the GFCF Diet website at http://www.gfcfdiet.com.
The Good News Doctor and The International Autism Research Center
"The Good News Doctor Foundation"
1663 Georgia St. N.E. Palm Bay, Florida 32907
Overview of Autism/PDD:
The Clinical Evaluation and Research Treatment Options©
Jeff Bradstreet, M.D., FAAFP [long, comprehensive review, with many abstracts of published research] May 2000
While I do not have a complete answer, medical research is certainly giving us some significant clues. The right genetic mix with a potent immune insult, injury or event, seems to be the setup for autism to develop. The State of California has been tracking autism for years and the incidence has increased by 200-400% (depending on who gets included in the data) in the past 12 years. Within the next few years I believe the immunological etiology (what causes it) of autism will be well documented. Here are a few of the major clues:
1.) Many autistic children have a history of either frequent early ear infections or milk/formula intolerance. The frequent ear infections may affect sound input during critical phases in brain development. This points to a weakened immune system and should be considered for evaluation before proceeding with routine vaccinations. These infections combined with a weak immune system, may also influence the immune system in adverse ways, making vaccine reactions and autoimmunity more likely. They may further be caused by immune changes induced by vaccines. (Well documented in the literature). The problems with infant formulas point to a casein intolerance from an early age.
2.) In young children, autism is often minimized or greatly helped by removal of casein and gluten: (Shattock, Reichelt, Cade, Friedman, see research/medical abstracts attached.) Gluten and casein have immune, as well as neurotransmitter impacts. Gluten and casein therefore have the ability to cause immune dysregulation and neurotransmitter imbalance. (Fudenberg and Cade, see research/medical abstracts attached.) Since gluten (grains like wheat, oat, barley, rye and spelt) and dairy casein are such an important part of the diet of most people, changing is a challenging decision for most of us. Here are some abstracts, from a diverse group of researchers, on the effects of milk-derived opioids known as casomorphins on the immune system and brain, so you might be more informed on the possible effects these have on your child. These are merely some examples of one dietary opioid. Dr. Cade's group at UF recently published their findings on rats injected with beta casomorphin. See the August ARI Newsletter Vol.13.No.2, for a good review of the subject. In effect, the research showed that casomorphin caused the rats to develop autistic-like behaviors. This is perhaps the best data currently to encourage you to remove gluten and casein from your child's diet. There are several good ways to get info on this. The Autism Network for Dietary Intervention (ANDI) is a good starting place. I recommend you get Lisa Lewis' book Special Diets for Special Kids, which we keep in supply. We see increased opioids in the urine almost 100% of the time in autism, using either Dr. Shaw's lab in Kanasa or Dr Reichelt's lab in Norway. They are identical to casomorphin and gliadomorphin and go away after dietary elimination (it may take 1 year to normalize). We therefore assume a dietary source for these opioids. This understanding has been confirmed in numerous medical articles.
Click here to reference ABSTRACTS. See:
Type I (insulin-dependent) diabetes mellitus and cow milk: casein variant consumption
Effect of beta-casomorphin on neonatal sleep in rats
Linear and cyclic beta-casomorphin analogues with high analgesic activity
Beta-Casomorphin-immunoreactivity in the brain stem of the human infant
[The behavioral effects of beta-casomorphin-7 and its des-Tyr analogs]
Casein-derived peptides can modulate the production of 5-hydroxyeicosatetraenoic acids in human neutrophils
Stimulation of human peripheral blood lymphocytes by bioactive peptides derived from bovine milk proteins
Nutrient intake is modulated by peripheral peptide administration
Inhibition of small intestinal motility by casein: a role of beta casomorphins?
Milk protein-derived opioid receptor ligands
Beta-Casomorphin causes hypoalgesia in 10-day-old rats: evidence for central mediation
2) Avoid all excitotoxins: MSG, glutamate, glutamine, caseinates, hydrolyzed vegetable protein, natural flavorings, texturized vegetable protein, Nutrasweet*, aspartame, soups (unless it is specified that they contain no MSG). Also be very cautious with all prepared or restaurant food. Assume the worst. Go for plain food, e.g.: grilled fish or chicken, plain rice, steamed vegetables at restaurants. Use MSM to help detoxify your child's system (see supplement section).
You may contact us, frequently if need be, at The International Autism Research Center and you should also subscribe to Dr. Rimland's monthly newsletter. It is one efficient way to stay current - they do all the work of researching the world's literature.
Get a copy of the DAN! (Defeat Autism Now!) Protocol
from them as well. Their address is 4182 Adams Avenue
San Diego, CA, 92116.
We Cured Our Son's Autism
By Karyn Seroussi
Copyright © 2000 Karyn Seroussi
When the doctors said our son would be severely disabled for life, we set out to prove them wrong.
When the psychologist examining our 18-month-old son told me that she thought Miles had autism, my heart began to pound. I didn't know exactly what the word meant, but I knew it was bad. Wasn't autism some type of mental illness -- perhaps juvenile schizophrenia? Even worse, I vaguely remembered hearing that this disorder was caused by emotional trauma during childhood. In an instant, every illusion of safety in my world seemed to vanish.
Our pediatrician had referred us to the psychologist in August 1995 because Miles didn't seem to understand anything we said. He'd developed perfectly normally until he was 15 months old, but then he stopped saying the words he'd learned -- cow, cat, dance -- and started disappearing into himself. We figured his chronic ear infections were responsible for his silence, but within three months, he was truly in his own world.
I had always thought that the worst thing that could happen to anyone was to lose a child. Now it was happening to me but in a perverse, inexplicable way. Instead of condolences, I got uncomfortable glances, inappropriately cheerful reassurances, and the sense that some of my friends didn't want to return my calls.
I'm a natural skeptic and my husband is a research scientist, so we decided to test the hypothesis that milk affected Miles' behavior. We gave him a couple of glasses one morning, and by the end of the day, he was walking on his toes, dragging his forehead across the floor, making strange sounds, and exhibiting the other bizarre behaviors we had almost forgotten. A few weeks later, the behaviors briefly returned, and we found out that Miles had eaten some cheese at nursery school. We became completely convinced that dairy products were somehow related to his autism.
My husband also told me that the other type of protein being broken down into a toxic form was gluten -- found in wheat, oats, rye, and barley, and commonly added to thousands of packaged foods. The theory would have sounded farfetched to my scientific husband if he hadn't seen the dramatic changes in Miles himself and remembered how Miles had self-limited his diet to foods containing wheat and dairy. As far as I was concerned, there was no question that the gluten in his diet would have to go. Busy as I was, I would learn to cook gluten-free meals. People with celiac disease are also gluten-intolerant, and I spent hours on-line gathering information.
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